Friday, 23 October 2015

Maddie - 9 hours after his op.

I was so glad to find our tough Texas buddy sitting half upright in his hospital bed  .. 'wild' awake, with a BIG smile on his face when seeing me. :-) He told me feels fine, but his eyes were telling a different story - the after effect of the anaesthetics, so he still needs lots of rest and sleep after such a major operation.

He was telling me about how weird it is, feeling pain, as well as pins and needles in his foot that was no more part of his body. He says it feels as if that foot is twisted to the side and sometimes painful. He also had the urge to pull up both legs to his body. Apparently the sensation he feels in the missing foot is of nerves been cut off and the brain thinking the foot is still there. He was expecting the surgeon to arrive on his evening rounds soon. I'm sure he'll have lots of questions for him ready.

No food yet for the patient, except for a small fruit juice and lots of water, then at bedtime another small fruit juice. He was humouring the nurse, saying he'll pay her R50 for a nice juicy steak. She just laughed at him. :-)

He is chuffed that I'm keeping the blog going. I'm hoping to do so until he's ready to continue.

Driving late at night is NOT ideal for any woman in Gauteng, S.A., so we agreed that from tomorrow I'll visit during morning and afternoon visiting hours and not in the evenings.

Although we feel very sad that Dan had to loose a valuable and important part of his body today, we feel grateful that the amputation was successfully performed. We wish Dan a speedy recovery so that he can take up his next challenge - walking outof the hospital with crutches, and then,  learning and getting used to a prosthesis a bit later. With willpower like his, NOTHING is impossible.

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Maddie - afternoon update

I eventually got to see Dan in High Care. He was fast asleep, with the oxygen mask still on his face.  I stayed at his bedside for a long time. Lucy, the nursing sister  encouraged me to talk to him. I touched his face,  hoping that he would wake up, but he was in a deep sleep - understandable. I decided to go home and catch up on lost sleep too. I'll give the afternoon visiting hours a miss, and will go to the hospital this evening again. I'm positive that he'll be more awake by then.

I feel relieved that all went well with the operation.  The surgeon mentioned that the part of the leg that has been removed, will now be sent to the lab for extensive analysis, the results that will be made known to us later.

On behalf of Dan I want to thank all his family and friends, as well as mine, who called and send messages to wish him well for today's op. It  means so much to both of us.

I'll keep you updated with our beloved friend's progress daily.
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Maddie - after surgery

12 noon
I spoke with the surgeon after the op - according to him all went well. So far, so good.

I was shown where the High Care section is, where he'll be moved to for the next 24 hours. I waited in the waiting area for a long time, then later walked back to the theatre recovery room, and there he was, still recovering from the anaesthetics.
The sister advised me to go back to high care section where he'll be moved soon.
I'm waiting to be called by the nurse as soon as they've finished making him comfortable and putting up all the IV drips etc. I'm anxious to see him, but I think he might not be aware of my presence at this stage.
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Maddie - Day of surgery

Late to bed last night (not ideal), and up very early at 4h30 this morning.  Dan wanted to feel fresh and have a good shower this morning, but oh my, a cold shower it was, as he forgot to put the geyser on last night. Dan made me a cup of good coffee - he could only smell it and for obvious reasons not have one himself.

We were on the road at 5h30 and checked into hospital well before the required time.   We were directed to Ward 2B (the lady joked and said ".. TO BE or not to be". :-)

Hundreds of forms to complete. I tried to help where I can.  Inbetween and a bit overwhelming, different nurses, wanting to do all kinds of body checks like blood glucose levels, blood pressure etc. I have to admit though, all friendly staff. Dan is chirpy with the staff and jokes with them all the time. My brave friend ... facing reality of the whole situation, hiding his sadness of losing a limb today, but still showing good spirit.  We decide to take last pictures of him with both legs.  By doing that, I feel so sad. :-(

I've met his surgeon, dr. Philip de Lange, also the lady anaesthedist, who advises him not to play tough and refuse pain killers when offered to him. After discussion with the surgeon, they decide to give spinal sedation as well, which will help with pain control afterwards.  He asks questions, like when feeling will come back etc. I felt teary when they wheeled his bed into the operating theatre, but I put up a brave face.  Now for the long 2 hour wait. The surgeon promised to have a word with me after the op.

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Thursday, 22 October 2015

Day 77 - Maddie's arrival, Day before surgery.

10:12
This is from my cell phone.
I am in my favorite restaurant.
This will be my last two legged walk.
Maddie just boarded her airplane in George. She should land in two hours, then will rent a car , and drive to my house.
I am now going to walk to the hardware store to buy a hand shower kit.
Everything I do, is sad.
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21:00
Another busy day. Maddie is here :-) We got the house clean, and a bed for her ready. We won't need her bed tonight. (wink wink)
I walked about 7km. Even if there had never been any problem with the leg, I would want to see a Doctor about it. It hurts deep inside. But I can't imagine a more serious reaction from a Doctor than I'll get tomorrow morning anyway.
Everything I did today was accompanied by a thought that it will probably be the very last time I will ever do that particular action again. 
 Things like crawling under the table to set up the computer. How long will it be before I feel like crawling under a table again.

I got the hand shower installed, and I made the hose long enough so Maddie can wash her hair in the sink. Still no shower chair though.

So many friends have sent SMSa or WhattApps to me today. That was nice.

Maddie and I worked hard today. We are both tired, and have to get up early. Checkin is at 06:00.

Every thought is preceeded by the knowledge that I will be a cripple tomorrow morning.
The occupational therapist said that I will have a much better operation than is usual, because they have been able to plan and double check, and discuss things over and over.
Most of the amputations are for trauma. Then the doctors don't have the advantage of  time, planning, and study.

I thought this would be a long blog, but there is nothing to say that I haven't said before. There is nothing to think, that I haven't thought many times before.

We taught Maddie cell phone to do blogger posts, so she will do the blog from her phone.

I have to stop drinking and eating now :-( I am having a last Horlicks.

Thanks for all your thoughts.
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Wednesday, 21 October 2015

Maddie - Feeling exited ...

It's Wednesday evening, nearing 10 pm.
I'm flying out to Johannesburg tomorrow morning.   It will be great to see my friend again ... 13 hours from now.

There are big challenges ahead for both of us.  I think we both have our own fears of the near future, but we'll chew the elephant one piece at a time.

Thanks to family and friends for their well wishes to Dan for his upcoming operation. We both appreciate being in your thoughts ... and prayers.

I'll endeavour to keep Dan's blog updated as best I can, when he is unable to do so.

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Day 76 - Getting ready for Maddie

03:20
Wild awake. I am having hot soya Horlicks.

My bad leg hurts. Inside the leg.
A thousand thoughts. None stay around to be of any use. They come in, occupy my brain, demand attention, but as soon as I start to think about them, another appears and demands attention. A great example of how NOT to get anything done.

My back is sore, and I have sciatica. It will be a lot worse tomorrow night after moving computer, TV , 2 printers, and the large table out, and trying to get the bed out of the shed. The beds were the first thing put in the shed, and there are a couch, refrigerator, 2 computers, a large cupboard and 2 tables put in after.

So my plan is to first clean the house because all flat surfaces are covered in papers from doctors. Move the computer into the living room. Shit......That is a full day right there. All the cables run in the ceiling. I'll have to drill new holes in the ceiling, go up into the ceiling , and re route all the wires.
I would rather read my book.

I remember watching an old movie about this normal guy that got into trouble with the Mafia, his wife was divorcing him, he had money problems, and he lost his job. Then he was in a very bad auto accident, and his last words to the paramedics as they were trying to cut him out of the wreck was "Oh Thank God."
Imagine, a solution to all the problems you have, and all future problems. Of course if you have many good things in your life, then you don't want to lose those. Like throwing out the baby with the bath water.
But what if the baby is a sniveling, whining, asshole? Then you cure two problems at once.

I wish I had moved quicker on the car purchase. Then I could just collect Maddie at the airport, and we would save a few thousand rand from having to rent a car.
I wish I had not spent 6 years worth of my life savings, in the last 4 months. My finances are like I am mining a finite, limited, resource. Totally unsustainable.
I wish I had eaten healthier.
I wish I had worked faster with the solar system, so it was better. When will I ever get up on the roof again?
I wish I did not need the leg removed.
I wish I didn't have cancer.
I wish .... for world peace. Isn't that what wins beauty contests? The world just doesn't want to hear about cancer, and amputations. The world wants fluffy, pink, clouds to live in.
3 months ago, I lived in a fluffy, pink, cloud.
 I WANT MY CLOUD BACK!!!
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04:15
I just tried writing a letter to Maddie. I wanted to tell her some important things to remember regarding her planing to come here. I couldn't think of a single constructive idea.
 ME! The idea man...Nothing.

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19:10
A very busy day.
After getting up around 8, I had my egg(s), and some coffee.

Today is normally a chemo day, but with the amputation, they are stopping chemo for a month.
I am still getting tired, and I am sure I am not so smart.  Maybe that will improve with a few weeks of no chemo.
My leg constantly hurts. I have no gauge to tell if is real cancer hurt, or just a sprain, or an angiosarcoma tumor puking bad cells throughout my body, or maybe it is my imagination. I would worry, but in 36 hours that leg will be in a dumpster someplace. Actually they are doing a biopsy on it.

I decided to do up in the ceiling first before it got hot up there. Moving the TV dish cable turned out to be trivial, and I never even went into the ceiling. Yesterday I bought some wiring cable, and strung that between the inverter, and the main circuit breaker panel.
Then moved all the satellite dish decoder, speakers and computer monitor into the Living room. Plugged everything in, and I now have TV on the computer monitor in the living room. No main computer, but that is another problem for another day.
Much of the boxes and useless stuff in the living room, I took out to the shed. I went to the shed, to see if there was anyway to get the beds out of it. Not an easy task. I asked the gardener next door if he would be available to help unpack the shed and he said yes. Both beds in the shed are Queen size. Maddie suggested a single bed. When I sleep, I take up little room, and I don't move around a lot. Maddie suggested that maybe we could make it work with both of us in the same bed, because she doesn't move around much either.

I decided to call the Occupational Therapist. She seems sharp and switched on. I talked to her for a few minutes, and she was a fountain of good ideas. She said that after the amputation there are a few things she suggests.
1. Always make Maddie the keeper of the crutches. That way she is always there to help, and you can't accidentally zoom off and hurt yourself.
2. Put a bright light next to the bed, so every time you want up to pee, you turn on the light. it will help you see, and it will tell Maddie to bring the crutches.
3. No wires, cables, or dogs on the floor. I smiled because I have 2 cables running right across the bedroom floor. I have tripped over them a few times today.
4. Always sleep with good leg near the edge of the bed.
5. Stump will be very tender for a few weeks. Sleeping with Maddie will probably make both of you lose sleep worrying about bumping the stump. Separate beds till the stump tenderness goes away.
6. Stay off the floor. Exercises in bed only. Getting up off the floor with your balance off, will result in a few falls. Only after you get a good feel for new balance points will the floor be an option.
7. Chemo is evil stuff. It is hard to walk if you are whole. With a balance problem, AND chemo you will fall. Be Very Careful. Make Maddie the judge of whether you can move on crutches. Stupid people never know they are stupid. That is also one of the reasons there is no chemo for 3 weeks after a leg amputation. An arm amputation is 1 week.

So we either needed to get the beds out of the shed, or buy new ones. I went bed shopping, and actually found a nice single bed. I bought it and they delivered it.  Problem solved. Now to move the computer, and move the computer table out to the shed, so there is room for the new bed. Maddie will get the new bed, and I will sleep in the old one.

While bed shopping I looked at some other cars. That white Mercedes is still my preferred one.
I sometimes get like a huge energy drain. While looking at a used car lot, I got super tired. In seconds. I sat in the beetle and fell asleep. the guy banged on the window asking if I was alright. I was fine then and looked around some more. When shopping the other day I had the same, and I drank 2 red bull in the shop. That helped, but then the caffeine rush stays long after the tired attack stops. I think maybe the low carb diet, or dehydration. But it comes quick, and leaves quick.

I came home and hooked the inverter up to a new circuit breaker in the main electrical box. One less cable across the floor. There just isn't time to do the inverter out put wiring, so I ran the existing wiring up above the cabinets, so it is out of the way, just not real pretty. I also ran out of time for mounting the TV monitor to the wall. It will live on a stack of books for . . . . for probably ever. :-)

Supper is spinach and chicken breast.
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