Feb 18 - Wasted day

19:30
Yesterday's 15th Chemo was nominal. I chatted lots with a fat lady. She had lymphoma cancer.
Afterwards, it was pouring with rain. I couldn't even see the parking lot from the doors, so I sat in the hospital cafe and ate lots.
I had a bad night after chemo, and only got to bed after 3:30. Lots of Phantom Pain. I think the physio session made the pain worse.
It works much better to just stay up till I am falling asleep, then go to bed. That saying "bed is for sleep only" works well.

I only awoke this morning at 10:30. I have had many 1 and 2 hour naps today. I had a long list of things to do, but I never even got my leg on, or opened the front door. All I have eaten today is one peanut butter sandwich.

I need to start getting ready for the George trip. I wanted to start the beetle, get the tool set out of it and put it in the Atos. The Atos horn stopped yesterday while I was using it.  Internet says probably bad steering wheel airbag ... $$$. I'm hoping for a loose wire.

I laid down after almost falling out of my wheel chair at 15:00. I try to stop the wheel chair with something soft in front of me. I just got up at 19:00. Sleep will be hard to come tonight.
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Feb 16 - Blood and Physio day

07:30
 Finally a good night sleep. I went to bed at 11:30 and was up at 06:30. Seven hours of straight sleep. I feel like a  human.

I just had morning Lemon water, and am working on a cup of coffee. My coffee beans are 60% Robusta and 40% Arabica. The love of Robusta must be from time spent in northern Africa.

I have a busy day planned. First do dishes that have piled up, then laundry. I need to go to the pharmacy, then go do the blood test for tomorrow's chemo. This afternoon I have a physio session with Leonie. I am sure she will come up with devious ways to make me feel silly with the prosthesis.

I'm starting to plan my 6 week break after the last chemo, before the PET scan. The chemo tomorrow will be number 15 of 16. Only 2 more to go.
I'll be driving to George to bother Maddie for 6 weeks. I think, driving will be better than flying because of all the paraphernalia for a new amputee.
I need a wheel chair, crutches, and a cane. Lots of chemicals to clean the liner and socket. Plus a suitcase. The little car will be full.

This morning I weigh 85.8 kg. (188 pds). That is 8 kg (17.6 pds) more than in December. I am sure it is the new drugs. I have eaten so little in the past 4 days, I should be skinny.                                                                                                                                                  
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17:00
Just got home.
 Blood testing was nominal.

Then I got all hot and sweaty with Leonie. :-) Physio was hard work. We started out walking about 500 meters at different paces.
 Then we went inside to the parallel bars. So many prosthetic skills rely on balance on the prosthetic leg only. My body on the prosthetic leg balances on the outside of the foot, just behind the little toe. I must keep strong back pressure on the socket to prevent collapsing. She tried to have me do lots of almost dance steps with my good leg while balancing on my bad leg. I had to hang on to something. There were brief times when I could balance.
Next was "braiding". That is when you walk sideways by placing one foot on the far side of the other. sometime in front, and sometime behind. Very difficult with a stiff knee and stiff ankle.

Then we worked on getting up after a fall. We tried many things I finally managed to get up once with just the cane. I need to practice that a lot.
I told her I want to plan on doing a parkrun. She has done many of the local parkruns. We went outside and she watched me "race". She had a few very good tips to speed up my walking. She says she has seen many above knee amputees walk very fast. Almost running speed. She said she wants me to be a very fast walker before thinking about running. She suggested a light strong walking stick, as long as from the ground to my elbow. Then using that, move my arms in an almost exaggerated swing while using the stick only on the right side.
Next week we will move on after I show her my mastery of the stuff I've learned today. She will also give me an exercise program for the next 6 week while I am in George.

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Feb 15 - Feeling Human again after chemo

09:30
I have had a very strange last 4 days. Since the last chemo I have slept so much. I don't know if the chemo is the cause of the sleeping, or all the drugs. Maybe both.
The other day after 12 hours sleep I was in the wheel chair going to pee, and fell asleep in the wheel chair for over an hour. I awoke and really had to pee.
I was supposed to wear my leg to try and get the stump shrunk enough for a permanent socket, but I just went 2 whole days without even putting the leg on.

I put the leg on this morning before getting out of bed, and will try to wear it all day.
Yesterday in between naps I walked 1.5 km. I was trying different settings on the hydraulic cylinder for the knee. Today I will try walking after increasing the flexion resistance, and decreasing the extension resistance.
That leads to a much smoother walk, and looks much more natural, but it makes it harder to feel the leg position, which makes a fall much more likely.

I went to the local pharmacy where one of the pharmacists is a man that is an above knee amputee like me. He and I always chat about our problems. He is a supervisor, so gets away with chatting to a client. He has a C-Leg micro processor controlled knee.  His face was all yellow, and his nose was huge. 

He told me that his wife's boss was retiring, so there was a big black tie party. They arrived and he went to the free bar to get a drink for him and his wife. The bar was crowded. He got the drinks, and stepped back to give her her drink, then stepped forward to get his drink. Stepping back had put pressure on the toe, so unlocked his leg, and when he stepped forward to get his drink the leg collapsed. He fell and hit the bar counter with his upper lip just below his nose. It broke his nose, and knocked him unconscious. He woke up in an ambulance covered in blood. 

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I have been playing with Google Analytics. It is a Google service to show the audience of your web pages, or blogs. It shows me graphs and data like these.

This shows the monthly volume of sessions for my blog by the location of the inquiring server.

This shows by country for the last month. Note lots from China and Russia. These are hackers trying to take control of the web site.

This page shows sessions, and bounce rate. Bounce rate is when someone accesses the blog, but doesn't stay long enough to read anything, like a hacker. I can also ask it to show the bounce rate by country, and almost all bounces are from China or Russia. This also shows number of session by city.

A session is when someone stays on the page at least for a minute. In other words, a session is probably a real person reading the blog.

I can get a much more detailed analysis if I want. Like which IP Address accessed the blog. This means I could with a little help tell who accesses the blog. It shows how easy it is for the NSA to get information on people.

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My laptop had stopped working. It was like the keyboard was broken. The internet offered hundreds of stupid and useless ways to fix it, but one guy said it could be due to a swollen battery pressing up on the keyboard, so many keys were stuck in the pressed position. That was it. I removed the battery, and the laptop works fine. Now to buy another battery.

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14:30

Temperature is 34C (93F) and I just walked without cane and without crutches, 2.02 km. Which is 2.6 km/hr. 

That would be a 2 hour Parkrun. They stop timing after 1 hour. I feel I could improve maybe 10% with practice, but to cut my time in half, I just don't think so.                                

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Feb 9 - Another Blood day

I had a good night sleep, but it was drug induced. :-( Lots of PLP.

Today I have not used the wheel chair or any crutch. When doing long walks I do use the cane.

I found a wonderful web site about Transfemoral amputations and the prosthesis used.
http://www.amputee-coalition.org/inmotion/mar_apr_04/transfemoral.html
They have 5 articles.

Today was blood test day. I walked to the blood test place. They were not busy, and I ended up talking to the ladies for about a half hour. I then didn't feel like eating at the local restaurant, so I just walked back home.

Today I walked 1.9 km. Walking time 1:05. I think I walk at about 2 km/hr. The articles I have read say the average patient selected walking speed for AK's is 2.5 km/hr.
With both legs, I used to walk at about 5 km/hr.
I was upset because I am so slow, but it looks like I am almost up to the average for above knee amputees.

In the last 5 days, I have walked 5 km with just a cane for support.
 One problem everybody has with an AK prosthesis is taking smaller steps with the good leg than the prosthetic leg. The physio is always telling me to lengthen the stride on the good side. The cane helps with that, because the cane is on the good side. One reason it helps to lengthen the stride on the good side is because it make the toe off at the beginning of the swing phase more pronounced, and should reduce stumbling. But I feel going faster to be scary.

Even the 1 km walk in 30 minutes is very tiring. I am not in good shape for this type of exercise.
I need a good soft grassy area to learn to run on. Then I'll be zooming.

Tomorrow is chemo day. I think it will be number 14. Two more, and I will be done.  :-) .....
Till the next time :-(

I will only use a cane and the leg at the chemo tomorrow.
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Feb 5 - long crutch-less day

08:00
I woke up at 06:00 and got up, then laid down for a nap, and only got up now.

I had a restless night, but not from PLP. I was just restless, and tossed and turned all night.
I had little PLP, I hope my new drugs and socket are doing that, and it isn't something that will change later.
--
11:30
I went to Bradley and he removed my little seat on the back of the socket that I loved, but made walking difficult. Standing for long periods, like doing dishes will be harder, but walking will be easier.
--
15:30
I just walked one kilometer with only a cane. 30 minutes exactly. I didn't stop once, and got very tired.
I was thinking how if I could do a 5 km parkrun, I would consider myself cured of a missing leg. That dream is a long way away.
I used to walk at a leisurely 10 minutes a kilometer.  My fastest parkrun was about 7 minutes per kilometer.
I now can do one kilometer in 30 minutes. That would be a 2 and a half hour parkrun. I think I need to learn to run with this leg.
--
21:30
I drove to the local shopping center, and bought fish and chips. I only took a cane with me. So today was a busy day, and also a crutch-less day.
I walked a lot, and only took the leg off 13 hours after I put it on. I like this new socket.
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Feb 4 - New Prosthesis Socket

I slept very well. 

I tried something new, and it worked well for one night, but I don't want to jinx it by saying how much I hope it works.

I took no pain pills, and no muscle relaxers last night. Just a Cymbalta (which is a long term nerve blocker), and a large dose of anti inflammatories. I thought that if the phantom pain was caused by wearing the leg so much, that the irritation of the end of the stump was putting stress on the cut nerves that used to run down to my feet. So maybe an anti inflammatory would relax the tension on those nerves to remove the phantom pain. I had very little phantom limb pain (PLP) last night. It was there, but manageable.

I didn't wear the leg much the last few days, as the stump has shrunk so much, that it bottoms out in the socket. Yesterday I went to Bradley, and he said that I need a new socket. But he doesn't think a permanent one can be used as the stump varies so much in size from day to day. But he made a zillion measurements and took my leg and told me to come back today.

I did laundry and managed to hang it up using crutches. I miss my leg.

Maybe me not wearing a leg for a few days was the reason for little PLP last night.

--

I went to Bradley today and got my leg back. 
Bradley had the new socket ready. It is MUCH thinner than the old one. I
kept the silicone liner on all night, and wrapped the stump in addition. So this
morning was the smallest it has ever been, and into the new socket was
tight. It feels very snug, and there is much less movement. It feel a
lot more like a part of my leg, than a big thing on my stump.

In the factory I walked all over without a cane or crutch. He expanded
the socket flare at the upper rear of the socket. I like that, because
when I stand it feels almost like a seat, and forces the knee into lock.
So I can stand for long periods of time without thinking about the leg
collapsing. (Washing dishes, brushing teeth, hanging laundry, chatting
with people)
He also expanded the bottom end of the socket, so the end of my stump is never touching anything. So maybe it will not cause as much phantom pain.

But now that I am home and walking around, I find the little flare seat
to be restrictive to my walking. I think I might have a blister already.
I wanted to walk to a restaurant for breakfast tomorrow, but not now. I go to Bradley at 10:00 tomorrow and they will remove the "seat" I like so much 

The whole walking feels more natural with the tight socket. There is
much more feed back from the motion of the leg to my thigh. I might even
be able to increase the extension resistance a bit. Now the leg sort of slams into full extension. I feel like a Nazi goose stepper. Increasing the resistance makes the leg go forward slower. That makes the feeling at extension more subtle, but also makes walking look more natural.

I told Bradley that I walked with a cane and found it much easier. He
says that about 80% of his long time above knee patients use a cane, but
are capable of walking without one. Sort of like me.

I have worn the new socket all day today. I'll try the same drugs tonight, because I know there should be lots of PLP tonight.

I was able to get the laundry off the line easily.
I had a good chat with my neighbor.

I hope the removing of the little seat will allow me good walking.

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Jan 28-29-30-31 - Lots of new drugs.

Jan 31 17:00

All those new drugs seem to only make me sleep. On Wednesday night, Thursday night, and Friday night I took all the pills like I was supposed to. Not much PLP, BUT... I slept about 40 of the last 48 hours. When I was awake, I had terrible balance problems, and never used my leg, only the wheelchair.
Of course I ate very little, and my poo-er became blocked.
During this time there was a definite reduction in PLP, so I need to find which drugs are good and which are bad. I fear that the PLP was reduced, simply because my brain was not functioning.

Last night I went back to my old cocktail of pills that helped last week. I got a good 9 hours sleep, and I woke up a bit clearer headed than any day for the last 4 days. I put on my leg, and went to the mall. I have lots of shopping, but it is month end and the stores are crazy. I ate fish and chips, and bought a bag that slings over one shoulder. Better for walking, and crutching.

One thing the physio lady proved to me, is that I can not get up after a fall if there is not something to grab on to. I fell last week in the middle of the road, and could not get up I had to crawl to a tree and get up using it.

Back at home I decided to do a walk. But I now take a cane with in case I fall. I can get up with a crutch or a cane. After walking about 100 Meters, I started using the cane to help walk, the cane makes balance so much easier, and my steps become longer. I did my half a km, then did it again. 1.03 km in exactly 30 minutes.
I think that if I use a cane, I could get to the small shopping center nearby. It is .8 km. Rest there, then back.
The cane really helps the balance, but it will not help during a fall, only after a fall.
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