Day 7 - First Oncology Visit

Today I had my first visit with the Oncologist lady.

The Oncologist lady is young-ish, maybe 40. She spoke well and explained things as best she could. She looked at my leg close, and said that there seem to be no new sores. That is good. She also noted that 2 of the 4 tumors are regrowing. I said that surely was bad news, and she said not really, because that means that the biopsy seems to have completely removed 2 of the tumors.

I asked why she doesn't cut out the other two right now. She said that
if they did that, then the pet scan might not pick up anything. She said
that was also why she doesn't want to do any chemo now. She said that
the best way with certain pet scans is to not do any chemo or surgery for a few weeks before the scan.

 So I got online, and found this. It also says 2 week after chemo or surgery.
http://www.metroregionpet.com/whentodo.html

  We talked about the internet. She then talked about the evils of
blogging. She says she often reads the cancer blogs, and most of the time they contain false or misleading information. If you are a blogger, the desire to give information, when there is none available requires imagination, not Medical knowledge.

 I asked why, on one blog the lady said her husband got diagnosed with Angiosarcoma, and within 24 hours he had a pet scan and started chemo. I get diagnosed and every body goes on holiday and only sees me a week later.
She said that if the Angiosarcoma had been initially found on a liver biopsy, I would have been admitted that day, and had the pet scan within hours. Mine was diagnosed was on an extremity in the skin.

 I asked what she would tell her Mother, if her Mother was sitting where
I am and had the exact same diagnosis. She said she would say "Mother, go home, eat healthy, keep an active lifestyle, don't read blogs, and don't blog. I'll call you in about a week with an appointment time for a PET scan."

I don't think I will ever be satisfied with the results from any test, because each test result brings more questions than answers. Each results of a test, just tells you what the next questions should be.
There are no answers with cancer.
She said that with Angiosarcoma the goal is not a cure. It is to
maximize the length of each remission.

 I hate the waiting.