Thursday, 6 August 2015

First Post


01:45 August 6 2015
Maddie's Birthday 

Background:
I am a 64 year old male. Retired, but physically active. I walk about 40 km per week. 
In 1981 I was stung by a scorpion on my left foot. I was far away from any medical facility, and only got treatment at a clinic, after about 3 weeks. 
For the last 34 years my lower left leg has been very swollen with lymph-edema. The scorpion sting apparently destroyed the lymphatic system in my lower left leg. 
About 15 years ago I developed a sore on the leg above the ankle. It never hurt, never grew, but never healed. 
In April 2015 my lower leg erupted into many sores. They weaped, and bled lots. I went to my GP and she prescribed creams and wrapping to reduce the swelling.

On 21 July 2015 my local GP referred me to a vascular surgeon. 

On 24 July 2015 the Vascular Surgeon decided to do a biopsy and a lymphogram to determine the cause of the new sores.

On 27 July I was admitted for about 36 hours into Unitas Netcare hospital in Pretoria South Africa. At 12:00 on the 27th I was put under a general anesthetic without any muscle relaxers. I had previously had strange reactions to general anesthetic muscle relaxers. Previously I was very slow to regain control of any muscles. I was conscious and awake, but just could not move for much longer than the anesthetist was happy with, so no muscle relaxers were used this time.
The Vascular Surgeon Removed 5 open sores surgically, and sent the tissue away for analysis. 3 of the sores were stitched closed, but 2 were bigger cuts, and left open. 

I was assigned a wound care lady that would clean the leg every other day, and wrap it tight to keep any swelling down.
On the morning of the 28th I went to the nuclear section of the hospital for the lymphogram. They injected some fluid between the toes. Twice on each foot. The I went into a CAT scan machine every thirty minutes to see how far the fluid was traveling. The good right leg had a steady progression of the fluid up past my groin. The bad left leg had a very slow progression, and the fluid stopped about 3 inches below the left knee.

I was discharged the evening of the 28th. 
I saw the wound care lady every 2 days until I met the Vascular Surgeon again in the morning, 5 August 2015.

 Doctor Fernandes told me there was a total lymphatic blockage 3 inches below the left knee, but the bad news was that the the biopsies on my leg sores were malignant. All 5 of them.
 
 The four new sores were reported like this:
 The tumor cells show large pleomorphic hyperchromatic nuclei with brisk mitotic activity.
 The immunohistochemical profile together with morphological features are compatible with a poorly differentiated epithelioid type angiosarcoma.
 
 The sore I had had for 15 years was reported like this:
 Ulcerated basal cell carcinoma, and is probably unrelated to the other four sores.
 
 With my friend Google, I was able to learn more about what all that meant.
 Angiosarcoma is a malignant neoplasm (cancer) of endothelial-type cells that line vessel walls. This may be in reference to blood (hemangiosarcoma) or lymphatic vessels (lymphangiosarcoma).
Its origin typically readily permits metastases to distant sites. Most tumors of visceral blood and lymphatic vessel walls are malignant. 

Epithelioid sarcoma is a rare, highgrade, soft tissue tumor that has a known propensity for local recurrence, regional lymph node involvement, and distant metastases.

That was bad news, because it means that the cancer will spread (metastases) easily.

It is 02:30, and I just can't sleep. Today I am supposed to go to a plastic surgeon that specializes in cancer skin operations. Dr. Andri Neuman. Then day after tomorrow I will see an oncologist.

Dr. Fernandes said that they usually remove all skin from the calf, and replace it with skin from the thigh. That means I will need to be hospitalized for 10-14 days, and must keep the leg held upright during that time. I fear my lower back will suffer greatly, as I must always sleep on my side at night, or my back pain keeps me awake.

I feel like I have been shat on by a Black Swan.

9 comments:

  1. Dan,
    We love you!
    RRATT, Z & #187(Oscar)

    ReplyDelete
  2. Thank you so much for the details. We will review your updates often. Remember, we are there for you....just on the other side the globe.
    Love
    SuZombie and RRATT, #187

    ReplyDelete
  3. Hi Dan, it's great (not the seriousness) to get your updates. You have the right to write ANYTHING. I agree that most of the 'thinigs' people worry about or discuss are so trivial. My brother has/had the same thing. He has had surgery 3-4 tunes, had all liftnoids(SP) removed from his neck area, lower back and belly. He has been in remission for many years. Don't give up hope. Hope is thinking of positive things, things that make you happy. A lot of things that made you happy.....think of those things and how much joy you had. Remember it is the things that make you sad are actually the things that gave you joy at the time. Please consider a trip to BMPR, business class, direct.....we'd be happy to contribute $ or miles...if you don't, we will come visit you. We love you Dan...thank you so much again for letting us know your condition and your many thoughts. Love Suzi and RRATT.

    ReplyDelete
  4. Oh, and Razor has told Adobe all about you. Now Adobe wants to meet you and probably lick your sores :-). Love RATT

    ReplyDelete
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