11:45
I slept well, and was up at 07:30, with little pain. I had breakfast, then needed a nap, and slept till 11:00.
Maddie sorted out the plane tickets to George. What a hassle. We are both booked to George on the 4th of Dec. I am coming back alone on the 13th. It is such a hassle getting all the forms filled out for special needs air travel.
I will rent a wheelchair there in George. It is R80 a week. ($5.80) You can tell George is a small town when it costs less than a dollar a day to rent a wheelchair.
The same company also sells wheelchairs. We will shop there and maybe get a bargain. :-)
17:00
I just crutched 1.62km (1 mile). I could have kept going, but I got bored. I am definitely getting stronger.
22:00
I am having one of the worst bouts of phantom pain. Maddie always says that exercise brings the pain.
This morning I weighed 82.5. Right after amputation, I weighed 77.8. That is almost 5 kg (10.4pds) in less than a month. All fat. Mostly in my tits, and gut.
I used to do much more exercise, and I used to eat far less. So tomorrow, I will start eating about half of what I have eaten in the last few days. I need to crutch lots more, and stop being a slug.
I just took a double dose of pain pills. They don't help that much with the pain, but they do tend to knock me out.
I hate the bed. Any time I am awake in bed, it is because there is phantom pain. If I am asleep, then I have no pain.
Consciousness + Bed = Pain
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The French Angiosarcoma Unit released a good report in 2011.
http://annonc.oxfordjournals.org/content/early/2011/05/12/annonc.mdr138.full
It does good comparisons of the different chemo treatments.
It looks like weekly Paclitaxel is the best that modern science can offer for angiosarcoma patients.
Yet right now, I am concerned with phantom pain. The elephant is not here now.
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